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The Big Dementia Conversation

At Care UK we understand that despite the leaps and bounds we’ve made in raising awareness of dementia, plenty of misconceptions remain and there are still a lot of things people don’t know or aren’t comfortable talking about.

A recent survey we’ve commissioned has shown that eight in ten adults believe dementia is still misunderstood, with 69% of the nation believing it’s a subject which is not talked about enough. Many people also admit finding the condition uncomfortable to discuss – and this is where our latest initiative, the Big Dementia Conversation, comes in.

Introducing the Big Dementia Conversation

We want to get the nation talking about dementia and some of the most difficult topics associated with the condition. Here you’ll find our online advice hub that takes a closer look at some of the less-talked-about symptoms of dementia. Led by Suzanne Mumford, Care UK’s Head of Nursing, Care and Dementia, with support from Angela Rippon, our advice hub features conversations from real families sharing their experiences, and expert advice from dementia specialists on how to navigate them.

The Big Dementia Conversation

The Big Dementia Conversation: Changes in personality

Changes in personality

Are you experiencing personality or behaviour changes with your loved one? Dementia may cause your loved one to experience changes which are typically out of character. For example, this can be changes in communication or more pronounced mood swings.

Watch now

Loss of inhibitions

From a lack of social awareness to choice vocabulary and inappropriate displays of love or desire, some people living with dementia can show a loss of inhibitions.

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The Big Dementia Conversation: Loss of inhibitions

The Big Dementia Conversation: Obsessive compulsive behaviours

Obsessive compulsive behaviours

Some people living with dementia can begin to show obsessive compulsive or repetitive behaviours. These can include a discomfort about things being out of order or a new ritualistic habit such as repeatedly washing hands.

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Changes in sexual behaviour

Often a difficult subject to talk about, but dementia can cause your loved one to experience changes in sexual behaviour, needs and interest. For example, this can include changes in intimacy in a relationship or unrequited sexual interest.

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The Big Dementia Conversation: Changes in sexual behaviour

The Big Dementia Conversation: Walking with purpose

Walking with purpose

What some people call 'wandering', at Care UK we call walking with purpose. It is a common behaviour for people living with dementia and can be distressing for their loved ones.

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Download our guides

Our guides cover topics like keeping active and independent in older age, how to help a loved one stay healthy and hydrated and dealing with the symptoms of dementia.

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Download our guides

Join in the conversation

We’re hosting almost a hundred events across the UK in January and February, from sessions with experts to better understand dementia to carers cafes where you can meet families in similar situations.

Want to be part of the conversation? Find an event near you.

  • 'Let's talk about dementia' at Trymview Hall, Thursday 1st February

  • 'Let's talk about dementia' at Heathlands House, Thursday 1st February
  • 'Let's talk about dementia' at Field Lodge, Tuesday 6th February

  • 'Adjusting to a diagnosis of dementia' at Snowdrop House, Tuesday 6th February
  • 'Adjusting to a diagnosis of dementia' at Knebworth, Thursday 8th February

  • 'Understanding dementia' at Oxbow Manor, Thursday 1st February